Publications

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Introduction

The results of CHSS studies are presented at international meetings that are attended by pediatric cardiologists and congenital heart surgeons from around the world. In addition the details of each study and analysis are submitted to scientific medical and surgical journals and are published after successful peer review. Published manuscripts are available on our website below.

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Transposition of the Great Arteries

Williams WG, McCrindle BW, Ashburn DA, Jonas RA, Mavroudis C, Blackstone EH and members of the Congenital Heart Surgeon’s Society. Outcomes of 829 neonates with complete transposition of the great arteries 12 – 17 years after repair. European Journal of Cardio-Thoracic Surgery 24(2003) 1-10. 

Culbert EA, Ashburn DA, Cullen-Dean G, Joseph JJ, Williams WG, Blackstone EH, McCrindle BW, and the Congenital Heart Surgeons Society. Quality of Life of Children After Repair of Transposition of the Great Arteries. Circulation. 2003;108:857-862.

Castaneda AR, Trusler GA, Paul MH, Blackstone EH, Kirklin JW, and the Congenital Heart Surgeons Society. The early results of treatment of simple transposition in the current era. Journal of Thoracic and Cardiovascular Surgery 1988: 95: pp 14-27.

Kirklin JW, Blackstone EH, Tchervenkov CI, Castaneda AR. Clinical outcomes after the arterial switch operation for transposition. Patient, support, procedural, and institutional risk factors. Congenital Heart Surgeons Society. Circulation 1992: 86(5): pp 1501-1515.

Norwood WI, Dobell AR, Freed MD, Kirklin JW, Blackstone EH, and the Congenital Heart Surgeons Society. Intermediate results of the arterial switch repair. A 20-institution study. Journal of Thoracic and Cardiovascular Surgery 1988: 96: pp 854-862.

Turley K, Verrier ED. Intermediate results from the period of the Congenital Heart Surgeons Transposition Study: 1985 to 1989. Congenital Heart Surgeons Society Database. Annals of Thoracic Surgery 1995: 60(3): pp 505-510.
 
Trusler GA, Castaneda AR, Rosenthal A, Blackstone EH, Kirklin JW, and the Congenital Heart Surgeons Society. Current result of management in transposition of the great arteries, with special emphasis on patients with associated ventricular septal defect. Journal of the American College of Cardiology 1987: 10: pp 1061-1071.

Wells WJ, Blackstone EH, and the Congenital Heart Surgeons Society. Intermediate outcome after Mustard and Senning procedures: A Study by the Congenital Heart Surgeons Society. Pediatric Cardiac Surgery Annual of the Seminars in Thoracic and Cardiovascular Surgery, Vol 3, 2000,pp 186-197.

Williams WG, Quaegebeur JM, Kirklin JW, Blackstone EH, and the Congenital Heart Surgeons Society. Outflow obstruction after the arterial switch operation: A multiinstitutional study. Journal of Thoracic and Cardiovascular Surgery. 1997; 114:975-90.

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Pulmonary Atresia with Intact Ventricular Septum

Karamlou T, Poynter JA, Walters HL 3rd, Rhodes J, Bondarenko I, Pasquali SK,Fuller SM, Lambert LM, Blackstone EH, Jacobs ML, Duncan K, Caldarone CA, Williams WG, McCrindle BW. Long-term functional health status and exercise test variables for patients with pulmonary atresia with intact ventricular septum: A Congenital  Heart Surgeons Society study. J Thorac Cardiovasc Surg. 2013 Apr;145(4):1018-1027.e3.

Karamlou T, Poynter JA, Walters HL, Rhodes J, Bondarenko I, Pasquali SK, Fuller SM, Lambert L, Blackstone EH, Jacobs ML, Duncan K, Caldarone CA, Williams WG, McCrindle BW. Long-term Functional Health Status and Exercise Test Variables for Patients with Pulmonary Atresia with Intact Ventricular Septum: A Congenital Heart Surgeons’ Society Study. AATS Annual Meeting April 30, 2012.

Ashburn DA, Blackstone EH, Wells WJ, Jonas RA, Pigula FA, Lofland GK, Manning PB, Williams WG, McCrindle BW, and the Congenital Heart Surgeons Society. Determinants of Mortality and Type of Repair in Neonates with Pulmonary Atresia – Intact Ventricular Septum.  Journal of Thoracic and Cardiovascular Surgery, 2004; 127(4):1000-1008.

Hanley FL, Sade RM, Blackstone EH, Kirklin JW, Freedom RM, Nanda NC, and the Congenital Heart Surgeons Society. Outcomes in neonatal Pulmonary Atresia with intact ventricular septum. A multiinstitutional study.  Journal of Thoracic Cardiovascular Surgery 1993; 105:406-423.

Hanley FL, Sade RM, Freedom RM, Blackstone EH, Kirklin JW, and the Congenital Heart Surgeons Society: Outcomes in critically ill neonates with pulmonary stenosis and intact ventricular septum: A multiinstitutional study. Journal of the American College of Cardiology 1993: 22(1):183-192.

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 Interrupted Aortic Arch

Jegatheeswaran A, McCrindle BW, Blackstone EH, Jacobs ML, Lofland GK, Austin EH 3rd, Yeh T, Morell V, Jacobs JP, Jonas RA, Cai S, Rajeswaran J, Ricci M, Williams WG, Caldarone CA, DeCampli WM. Persistent risk of subsequent procedures and mortality in patients after interrupted aortic arch repair: a Congenital Heart Surgeons' Society study. Journal of Thoracic and Cardiovascular Surgery. 2010 Nov;140(5):1059-75.e2.

Konstantinov IE, Karamlou T, Blackstone EH, Mosca RS, Lofland GK, Caldarone CA, Williams WG, Mackie AS, McCrindle BW for the members of the Congenital Heart Surgeons Society. Truncus Arteriosus Associated with Interrupted Aortic Arch in 50 Neonates: A Congenital Heart Surgeons’ Society Study. The Annals of Thoracic Surgery 2006; 81:214-23.

Konstantinov IE, Karamlou T, Williams WG, Quaegebeur JM, delNido PJ, Spray TL, Caldarone CA, Blackstone EH, McCrindle BW, and the members of Congenital Heart Surgeons Society; Surgical Management of Aorto-Pulmonary Window Associated with Interrupted Aortic Arch:  A Congenital Heart Surgeon’s Society Study. Journal of Thoracic and Cardiovascular Surgery. 2006; 131:1136-41.

McCrindle BW, Tchervenkov CI, Konstantinov IE, Williams WG, Neirotti RA, Jacobs ML, Blackstone EH, For the members of the Congenital Heart Surgeons' Society. Risk Factors Associated With Mortality and Reinterventions in 474 Neonates with Interruption of the Aortic Arch: A Congenital Heart Surgeons Society Study. Journal of Thoracic and Cardiovascular Surgery. 2005; 129(2): 343-350.

Jonas RA, Quaegebeur JM, Kirklin JW, Blackstone EH, Daicoff G. Outcomes in patients with interrupted aortic arch and ventricular septal defect. A multiinstitutional study. Congenital Heart Surgeons Society. Journal of Thoracic and Cardiovascular Surgery. 1994; 107(4): 1099-1113.

Chin AJ, Jacobs ML. Morphology of the ventricular septal defect in two types of interrupted aortic arch. Journal of the American Society of Echocardiography 1996: 9(2): pp 199-201.

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Tricuspid Atresia

Karamlou T, Ashburn DA, Caldarone CA, Blackstone EH, Jonas RA, Jacobs ML, Williams WG, Ungerleider RM, and McCrindle BW, for the Members of the Congenital Heart Surgeons’ Society. Matching Procedure to Morphology Improves Outcomes in Neonates with Tricuspid Atresia. Journal of Thoracic and Cardiovascular Surgery, December 2005, 130 (6), pp.1503-1510.

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Pulmonary Conduit

Poynter JA, Eghtesady P, McCrindle BW, Walters III HL, Kirshbom P, Blackstone EH, Husain SA, Overman DM, Austin EH, Karamlou T, Lodge A, St. Louis J, Gruber P, Ziemer G, Davies RR, Brown J, Williams WG, Jacobs JP, Tchervenkov C, Jacobs ML, Caldarone CA. Effect of Conduit Type and Size on Right Ventricle-Pulmonary Artery Conduit Durability in Infants Less Than Two Years of Age: A Congenital Heart Surgeons’ Society Study. Society of Thoracic Surgeons 49th Annual Meeting, Los Angeles, January 2013.

Hickey EJ, McCrindle BW, Blackstone EH, Yeh T, Pigula F, Clarke D, Tchervenkov CI, Hawkins J and the CHSS Pulmonary Conduit Working Group. Jugular venous valved conduit (Contegra®) matches allograft performance in infant truncus arteriosus repair. European Journal of Cardiothoracic Surgery. 2008; 33(5): 890-898.

Karamlou T, Blackstone EH, Hawkins JW, Jacobs ML, Kanter KR, Brown JW, Mavroudis C, Caldarone CA, Williams WG, McCrindle BW, and the Pulmonary Conduit Working Group for the members of the Congenital Heart Surgeons Society. Can Pulmonary Conduit Dysfunction and Failure be Reduced in Infants and Children Less Than Age Two Years at Initial Implantation? Journal of Thoracic and Cardiovascular Surgery, October 2006, 132 (4), pp 829-838.

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Coarctation of the Aorta

Quaegebeur JM, Jonas RA, Weinberg AD, Blackstone EH, Kirklin JW, and the congenital Heart Surgeons Society. Outcomes in seriously ill neonates with coarctation of the aorta: A multiinstitutional study. Journal of Thoracic and Cardiovascular Surgery 1994: 108: pp 841-54.

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Aortic Valve Atresia

Ashburn DA, McCrindle BW, Tchervenkov CI, Jacobs ML, Lofland GK, Bove EL, Spray TL, Williams WG, Blackstone EH for the Congenital Heart Surgeons Society. Outcomes after the Norwood operation in neonates with critical aortic stenosis or aortic valve atresia. Journal of Thoracic and Cardiovascular Surgery, May 2003, 1070-1082.

Jacobs ML, Blackstone EH, Bailey LL and the Congenital Heart Surgeons Society. Intermediate survival in neonates with aortic atresia: a multi-institutional study. Journal of Thoracic and Cardiovascular Surgery 1998;116:pp 417-31.

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Left Ventricular Outflow Tract Obstruction 

Hickey EJ, Caldarone CA, Blackstone EH, Lofland GK, Yeh T, Pizarro C, Tchervenkov CI, Pigula F, Overman D, Jacobs ML, McCrindle BW, and the Congenital Heart Surgeons’ Society. Critical left ventricular outflow tract obstruction: The disproportionate impact of biventricular repair in borderline cases. The Journal of Thoracic and Cardiovascular Surgery Sep 2007, pp1429-1436.

Hickey EJ, Yeh T, Jacobs JP, Caldarone CA, Tchervenkov CI, McCrindle BW, Lacour-Gayet F, Pizarro C. Ross and Yasui operations for complex biventricular repair in infants with critical left ventricular outflow tract obstruction. Eur J Cardiothorac Surg Feb 2010 37(2); 279-288.

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Aortic Valve Stenosis

Lofland G, McCrindle BW, Williams WW, Blackstone EH, Tchervenkov C, Sittiwangkul R, Jonas R, and the Congenital Heart Surgeons' Society. Critical Aortic Stenosis in the neonate: a Multi-institutional study of management, outcomes and risk factors. Journal of Thoracic and Cardiovascular Surgery 2001;121:pp10-27

McCrindle BW, Blackstone EH, Williams WG, Sittiwangkul R, Spray TL, Azakie A, Jonas RA, and the members Congenital Heart Surgeons' Society. Are Outcomes of Surgical Versus Transcatheter Balloon Valvotomy Equivalent in Neonatal Critical Aortic Stenosis? Circulation 2001 104[Suppl I]:I-152 -I-158.

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Outcomes Analysis and Data Process for Clinical Decision Making

Hickey EJ, McCrindle BW, Caldarone CA, Williams WG, Blackstone EH. Making sense of congenital heart disease with a research database: The Congenital Heart Surgeons’ Society data centre. Cardiol Young. 2008; 18 (Suppl 2): 1-11

Karamlou T, McCrindle BW, Blackstone EH, Cai S, Jonas RA, Bradley SM, Ashburn DA, Caldarone CA, Williams WG. Lesion-specific outcomes in neonates undergoing congenital heart surgery are related predominantly to patient and management factors rather than institution or surgeon experience: A Congenital Heart Surgeons Society Study. Journal of Thoracic and Cardiovascular Surgery. 2009 Nov 10.

Caldarone CA, Williams WG. The Congenital Heart Surgeons' Society Datacenter: Unique Attributes as a Research Organization. Semin Thorac Cardiovasc Surg Pediatr Card Surg Ann. 2010;13:71-75.

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UVR-SA Decision Tool (Critical Aortic Stenosis Calculator) 

Critical Aortic Stenosis Calculator

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Unbalanced Atrioventricular Septal Defect

Jegatheeswaran A, Pizarro C, Caldarone CA, Cohen MS, Baffa JM, Gremmels DB, Mertens L, Morell VO, Williams WG, Blackstone EH, McCrindle BW, Overman DM. Echocardiographic definition and surgical decision-making in unbalanced atrioventricular septal defect: a Congenital Heart Surgeons' Society multiinstitutional study. Circulation. 2010 Sep 14;122(11 Suppl):S209-15.

Overman DM, Baffa JM, Cohen MS, Mertens L, Gremmels DB, Jegatheeswaran A, McCrindle BW, Blackstone EH, Morell VO, Caldarone CA, Williams WG, Pizarro C. Unbalanced Atrioventricular Septal Defect: Definition and Decision Making. World Journal for Pediatric and Congenital Heart Surgery. 2010 April;1(1): 91-96.

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Anomalous Aortic Origin of a Coronary Artery

Brothers JA, Gaynor JW, Jacobs JP, Caldarone C, Jegatheeswaran A, Jacobs ML; The Anomalous Coronary Artery Working Group. The registry of anomalous aortic origin of the coronary artery of The Congenital Heart Surgeons' Society. Cardiol Young. 2010 Dec;20(S3):50-58.

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